Kostjuk Family: Faith Kids for Our Lexi Lea

Tuesday, August 25, 2009

Faith Kids for Our Lexi Lea

2 comments:

Leah Woldt said...: I love all the new pictures. Hope you had a fabulous summer. Thank so much for sharing. God Bless; August 26, 2009 8:12 AM
Hannah W. said...: She is so cute!
Cousin Hannah; August 28, 2009 10:08 AM

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Our day leading up to Reesie leaving us with like any other day with our precious girl. There was nothing out of the ordinary. We ate cupcakes, opened presents & visited with our girl as she slept through her party. We saved a present for her to open when she woke up. Gavin and Lexi unwrapped her last gift and read to her the last little books she would see with her eyes. Her heart rate was high but Reese would fluctuate with her heart rate ~ our nurse had just given her medicine 30 minutes prior so I was just waiting for it to kick in. The kids were getting antsy and wanted to leave but I couldn't leave her. I called Todd to come to the hospital and some nurses took the kids to occupy them by making a craft in the activities room and then brought them to our friend waiting to pick them up for an afternoon of play at 2:45. As the kids left, swarm of nurses and r.t.'s came to Reese's side.
The Lord's timing was perfect. I was able to hold her the entire time. Todd and I were able to hold her and comfort her through her last breaths. We didn't know this was coming and it was so very fast. The Lord gave her to us for 1 whole year allowing us to love her and comfort her and lastly to celebrate with her on her very first birthday. I'm thankful for the gift of Reesie on her birthday. I so love my Reesie and will cherish each moment we had with our baby girl. She spoke volumes without saying a word. Her smile through her eyes is what I remember most. Always a joy to hold my baby girl she was the highlight of my day.

Reese's Surgeries & Procedures

October 30, 2008 on her very first birthday - home with Jesus
September 24th 2008 - Transferred back to All Saints
September 5th 2008 - Transferred back to Huntington Hospital with Moraxella Catarrhalis Infection
August 2008 - Moved to All Saints Healthcare
July 2008 - Left hernia repair as well as a new patch
June 2008 - 2nd set of seizures; Tracheostomy at Children's
April 2008 - Broviac Line at Children's (right leg); L&B and 2nd Nissen Procedure w/ Dr. Muenchow
March 2008 - Open heart surgery (Children's Hospital of LA); put on C-Pap at Huntington Hospital
February 2008 - 1st set of seizures
January 2008 - Broviac Line (left leg/groin area); repair of sutures from Nissen w/ Dr. Muenchow
December 2007 - 1st Nissen Procedure; Gastrostomy feeding tube and skin tags removed w/ Dr. Muenchow
November 2007 - Diaphragmatic Hernia Repair w/ Dr. Muenchow
October 2007 - Birth - Heart & Lung Bypass Machine (ECMO)

Steven Curtis Chapman - Miracle Of The Moment
From the album This Moment

It’s time for letting go
All of our if only’s
‘Cause we don’t have a time machine
And even if we did
Would we really want to use it?
Would we really want to go change everything?
‘Cause we are who and where and what we are for now
And this is the only moment we can do anything about

Chorus: So breathe it in and breathe it out
Listen to your heartbeat
There’s a wonder in the here and now
It’s right there in front of you
And I don’t want you to miss

The miracle of the moment
There’s only one who knows
What’s really out there waiting
In all the moments yet to be
And all we need to know
Is He’s out there waiting
To Him the future’s history
And He has given us a treasure called right now
And this is the only moment we can do anything about

And if it brings you tears
Then taste them as they fall
And let them soften your heart
And if it brings you laughter
Then throw your head back
And let it go, let it go
You gotta let it go
Listen to your heartbeat

Be Thou Near To Me - Selah

Oh Lord I come with heart here open,
For in my hour of darkness I may be.
Seeking the joy of love unspoken
Oh Lord be Thou near to me.

And the holy voices sing “Hallelu!”
Ever will Thy reign be.
As I wander through this life,
Oh Lord, be Thou near to me.

Though In this burden of my making
Yet in the shadows still a light
I see Maker whose love is not forsaking
Oh Lord be Thou near to me

And the holy voices sing “Hallelu!”
Ever will Thy reign be.
As I wander through this life,
Oh Lord, be Thou near to me.

And the holy voices “Hallelu!”
Ever will Thy reign be.
As I wander through this life,

Oh Lord, be Thou near to me.
Oh Lord Be Thou near To me.

Kostjuk Family

Tuesday, August 25, 2009

Faith Kids for Our Lexi Lea

2 comments:

Visits From Around the World

About Me

My Blog List

Jeremiah 29:11

Why God Allows Suffering & Evil

October 2008

Now I Lay Me Down To Sleep ~ pictures by heather moore ~ March 2008

Gavin celebrating with Reese on her first birthday

birthday girl

SUPPORT FOR ALL CHROMOSOME 22 RELATED DISORDERS

Lexi Lea ~ 4 years

wrapped around my daddy's finger

Lexi Lea

lexi's favorite thing to do in the whole wide world - swing

Reese's Surgeries & Procedures

Blog Archive

Additional Friends & Family

Gymnastics Girl

Be Thou Near To Me - Selah

my love for food & cooking...

Some Favorite Songs

Sign Our Guestbook

Kostjuk Family

Tuesday, August 25, 2009

Faith Kids for Our Lexi Lea

2 comments:

Visits From Around the World

About Me

My Blog List

Jeremiah 29:11

Why God Allows Suffering & Evil

October 2008

Now I Lay Me Down To Sleep ~ pictures by heather moore ~ March 2008

Gavin celebrating with Reese on her first birthday

birthday girl

SUPPORT FOR ALL CHROMOSOME 22 RELATED DISORDERS

Lexi Lea ~ 4 years

wrapped around my daddy's finger

Lexi Lea

lexi's favorite thing to do in the whole wide world - swing

Reese's Surgeries & Procedures

Blog Archive

Additional Friends & Family

Gymnastics Girl

Be Thou Near To Me - Selah

my love for food & cooking...

Some Favorite Songs

Sign Our Guestbook

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